American Sickle Cell Association Appoints Regina Hartfield New Executive Director


The Sickle Cell Disease Association of America (SCDAA) has appointed Regina Hartfield CEO and President effective January 14, 2022. Hartfield served on the association’s board of directors for three years, most notably as chairman of the fundraising committee.

“Regina is an exceptional choice as the next CEO,” said Thomas Johnson, Chair of the CSAE Board of Directors. “His experience on the CAADS Board of Directors has given him a better understanding of the organization’s strategy as well as the priorities of those whom CAADS serves, namely people across America living with sickle cell disease and their families. Regina understands and appreciates the importance of keeping the person with sickle cell disease and their needs at the forefront of the daily mission and goal of CAADS.

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Under Hartfield’s leadership as chair of the fundraising committee, the committee showcased the SickleTini virtual fundraiser, which combined education and interactive activities and offered new sponsorship opportunities.

Hartfield initiated the development of the CSDAA 50th Anniversary Campaign Creative Kit, a marketing tool to guide strategic fundraising goals.

She was also a member of the Ad Hoc Committee for Improving Member Organization Partnership, working with the Chairman of the Directing Executive Board to develop an approach to member organization benefits, communication and inclusion strategies.

“I am delighted and deeply honored to take on this important role,” said Hartfield. “This is a pivotal period in the 50-year history of CSDAA. Awareness of sickle cell disease and its impact on people living with or carrying the trait has never been greater. My time as a member of the CSAE Board of Directors, coupled with my long experience in the not-for-profit and for-profit worlds, allows me to bring a unique perspective to this role. I look forward to working with the amazing staff, board and member organizations on behalf of those affected by sickle cell disease and related conditions. “


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Prior to joining the Sickle Cell Disease Association of America, Hartfield was responsible for federal, state, and commercial contracting for CVP, an information technology consulting firm in Virginia and Maryland.

While at CVP, she developed strategic outreach initiatives, drafted strategy and implementation plans for the national expansion of a federal health agency program, and managed a post-recovery grant contract. $ 30 million claim for the state of Tennessee, overseeing the staff and operations of the regional CVP. Office.

Previously, Hartfield was a community affairs professional in the New York nonprofit arena for over 25 years and brings his experience as a leader of nonprofit organizations.

Hartfield was senior vice president of programs and outreach for the Prospect Park Alliance. As a member of the executive team, she provided advice, support and commentary on policy, program administration, capital projects and financial management matters.

She oversaw the operation of five programs and managed a budget of $ 1.5 million. During his tenure, Hartfield guided his department in developing its five-year strategic plan, supported the park’s development and fundraising efforts, and served as a spokesperson and advocate for the park.

She was also responsible for community affairs and special projects at Memorial Sloan-Kettering Cancer Center, where she provided direction, direction and advice to the senior management of the cancer center.

His relationships with community leaders, elected officials and other stakeholders have resulted in increased funding, collaborative programs and a stronger presence in the community.

Hartfield developed a series of community cancer awareness conferences, which provided the community with access to the center’s top medical and research experts, as well as initiated and implemented cancer awareness programs for children, survivors and youth.

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Hartfield was the first community relations coordinator at the New York Botanical Garden. She instituted and managed outreach activities that grew audiences, encouraged diversity and built alliances.

She started the Bronx Day at the Garden, a program to encourage visitors to the original borough of the garden through free admission, entertainment from local artists, and activities focused on botany and horticulture.

In addition, Hartfield sits on advisory boards and is a member of the Universal Sailing Club, where she has served on its board in various capacities.

Hartfield graduated with honors from Lehman College, City University of New York with a Bachelor of Arts in Community Outreach.

Sickle cell disease is an inherited blood disorder that causes red blood cells to take a sickle shape, which leads to blockages that prevent blood from reaching certain parts of the body.

As a result, people with sickle cell complications may experience anemia, jaundice, gallstones, stroke, chronic pain, organ damage, and premature death. There is no one-size-fits-all cure. (sicklecelldisease.net)

The Sickle Cell Disease Association of America advocates for those affected by sickle cell disease and empowers community organizations to maximize quality of life and raise awareness while advancing the search for a universal cure.

The association and more than 50 member organizations support sickle cell research, public and professional health education, and patient and community services www.sicklecelldisease.org


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